Brain On Fire: Movie review

I have been wanting to watch this forever and a day. I finally had the chance! I am honestly so disappointed! This movie was based on an autoimmune disease called anti-NMDA receptor encephalitis.In a nutshell, the body fights the brain. It thinks of it as a foreign body that needs to go. Most autoimmune disease, like this one, are not fully understood. In turn, many doctors do not think of them first, or they are diagnosed through the process of elimination. 

Often a patient either feels, or is treated, as if it is "all in their head". Maybe they are treated as a hypochondriac. This just is not the case. I guess living this is what caused my unhappiness with how this movie portrayed things. Having experienced this process, I looked forward to the world, or hell, even my family and friends, maybe understanding how this is. 

I hoped, just maybe, people would get a visual of the hell it is living with not only autoimmune disease, but many other chronic pain illnesses. First you go to the doctor hoping for an answer. You do this for months, years even. In my case, twenty years. The doctors either are not informed, or don't believe your symptoms. You get told to be fit and active, eat better, and my favorite, you are just depressed. They try a medley of drugs, like anti-psychotics, anti-depressants, pain pills, and more. If you are lucky, you find the right doctor that diagnoses you.

The symptoms are all over the place. After you find a doctor, then comes work, family, and friends. Work will not accommodate your endless and changing disabilities. Many of these diseases are progressive. Some come in cycles. Your friends and family, well let's say they are the least understanding. They say they do understand, but about 25%, in total, of them really, truly do. Those rare ones will love you and support. The rest, not so much. They think you are lazy, or making an excuse. They cannot handle if you have a mood swing from medicines, or just plain lack of sleep and constant pain. Pain, yeah, let's talk about that. All day, every day. Some days better than others. Some days you cannot even function, mentally physically, or both. They get tired of helping, they get tired of you. Spouses, that's the hardest to maintain. They live these symptoms with you. Sometimes, it is just too much for them.

That brings me to the movie again. It is rare for anyone to get diagnosed that easily, or quickly. It is rare to have the support of any of the groups, work, family, friends, doctors. Let alone, ALL of them. It is HELL. It is LONG TERM. It is the tip of the iceberg in this movie. Yes, it brings light to the illness. Yes, it shows some of what you may experience. However, it does not come close to the fear, pain, uncertainty, loneliness, despair, emotions, being an experiment, being a human pin cushion, the financial stress, and I could go on and on. I believe you have the point though.

I live with Fibromyalgia, Chronic Pain Syndrome, MS, Chronic Migraine, Hypopituitarism, and just plain getting older. What I want to leave you with is this... LOVE that person with illness and disease. BELIEVE that person. SUPPORT that person. ENABLE that person. EMPOWER that person. ENCOURAGE that person. They can be so much more with those things. Most of all, have PATIENCE  and UNDERSTANDING. 

#love #repost #igers #instadaily #instagram #photooftheday #instagood #instamood #followforfollow #likeforlike #cute #life #IAmACreator #HonestThoughtandReviews #autoimmune #BrainonFire #Fibromyalgia #Multiplesclerosis #Graves #Hashimotos #Psoriasis #Lupus #Crohns #Arthritis #Addisons 

WEDNESDAY ON MY MIND

#WednesdayWisdom
#WednesdayWishlist
#happy #cute #love #repost #photo #instagood #beautiful #follow #amazing #like #tweegram #me #friends #family #Fibromyalgia #Autoimmune #MS

BRING YOUR FACE BACK TO LIFE

I love InstaNatural products. This Retinol Serum is perfect. It hydrates, smooths, and firms. It also helps reduce wrinkles and uneven skin tone. As always, the aroma is delicious. I apply this at night before my heavier cream. I use it in my "problem" areas like eyes, around mouth, forehead, chest, and neck. It seems my skin loves it, and it drinks it in. Not only do I look fresher and brighter, but it feels it. I ordered mine from their site at the link below. It is $20 for a one ounce bottle. Do not freak out, a little goes very far. 

#happy #cute #love #repost #photo #instagood #beautiful #follow #amazing #like #tweegram #me #friends #family #InstaNatural #Retinolserum #VitaminC #HyaluronicAcid #Niacinamide #hydrating #firming #smoothing #natural

https://instanatural.com/products/age-defying-retinol-serum

SEXY EVERYDAY BRA AND PANTY SET

This set is sexy, comfy, yet somehow functional. You can wear for everyday, or that special kind of day. I absolutely love the design pattern. You hear crochet, and this is not what you picture. The bralette and panties are see through with a pretty crochet design. The back is a strappy, halter on the bra, with an amazing pattern that feminizes your back. The undies are not just a thong design. They are a strappy V pattern, that does not cut into you. They also have the same pattern as the bralette. HSIA makes a beautiful set that is surprisingly durable. They are not the type to rip and tear easily. Yet, they are delicate looking. I am very surprised at the quality. The bra has a good hold for larger up top women. Nice bonus. They are available in Black, White, and Red. I would like one of each color!

#happy #cute #love #repost #photo #instagood #beautiful #follow #amazing #like #tweegram #me #friends #sexy #HSIA #bra #bralette #wireless #strappy #set #panties #crochetlacedesign #nounderwire

https://www.amazon.com/HSIA-Wireless-Bralette-Triangle-T-string/dp/B07CTDS3JT

ST. AUGUSTINE LIGHTHOUSE

ST. Augustine is an amazingly beautiful place. It has so much to do, whether you are there for a weekend getaway, romantic getaway, a wedding, family fun, and even business. There are beaches galore with dazzling white sand, sightseeing, downtown amenities, and too much to list. We were married on the beach at Anastasia Island State Park. The camping, beach, and proximity to everything is absolutely perfect. The view of the lighthouse, day and night, is superb. The SleepInn right by it is excellent with a staff that is super! We stayed there pre-wedding. The Travelodge In Old Town is amazing for family or romantic stays. The price is great, with a wide range of room sizes. The lady who owned it at the time, spent so much time with us, even giving me a precious gift of a very old mortar and pestle bowl when I told her I was there to find one. She was amazing. I have not been there since Wyndham took over, but I sure hope she is still there. Just two places I recommend. Visit the old town in the day for the fort, Ripley's Museum, shops, churches, the areas first distillery, historical places galore, and more. Ripley's has a package that includes all day train rides, def worth it! At night there is plenty of fun like Ripley's, ghost tours, restaurants, downtown, and bar scenes for all types. Let's not forget the beaches! They are right there, but Anastasia is by far my favorite spot. They also offer Military and Disabled pricing, as well as the fort does too! Make sure to have dinner at Harry's, you will remember your meal here! St. Augustine is a MUST  for  destination lists!

Harry's

St. Augustine Distillery

Anastasia State Park Beach

 https://hookedonharrys.com/


http://staugustinedistillery.com/


https://www.floridastateparks.org/park/anastasia#slideshow-4



https://www.ripleys.com/staugustine/

Ripley's

Lighthouse at night

Lighthouse Stairwell

Lighthouse view from beaches

#NationalLighthouseDay#happy #cute #love #repost #photo #instagood #beautiful #follow #amazing #like #tweegam #me #friends #family

https://www.wyndhamhotels.com/travelodge/saint-augustine-florida/travelodge-suites-st-augustine/overview?CID=LC:TL::GGL:RIO:National:10873&iata=00065402

https://www.choicehotels.com/florida/saint-augustine/sleep-inn-hotels/fl214

MY HEART IS FULL

My husband sacrifices so much for us, being in the military. I cannot express what an amazing husband and father he is. Military life is hard, but rewarding. I would not change being his support for the world. My pal, Sirius Black, keeps me company when I am alone. He is a handful and a half, but such a happy fellow. You cannot help but love him! 

 #TuesdayThoughts
#TuesdayMotivation


#happy #cute #love #repost #photo #instagood #beautiful #follow #amazing #like #tweegram #me #friends #family

UNIQUE TRAVEL PILLOW

This travel pillow wraps around with an extension in a Q design. That means support for any position, all around bodywise. It is inflatable with a built in pump that works quickly. It supports your neck, head, chin, and provides a place to rest your arms and snuggle. Have you tried to rest in your carseat and had no idea what to do with your arms? I use mine on long car trips, or when I have  headache and neck pain. I just relax and let it do it's job. It is microfiber covered. It also comes with a nice carry bag to pack it compactly for travel and space saving. With the extension, you can even share to provide a pillow for your loved ones. I have not seen a travel pillow like this before. It is my second pillow from VenusCare. The first one is fought over and in great shape still, so I am pleased to add this one! It is $21.99 on Amazon. They offer an additional two bucks off right now. Well worth it.


#happy #cute #love #repost #photo #instagood #beautiful #follow #amazing #like #tweegram #me #friends #family #VenusCare #travelpillow #Qshape #inflatable #adjustable #supportpillow


http://www.amazon.com/gp/product/B076WSQ2K6